7 End-Stage Dementia Signs in Elderly

end-stage dementia signs

We noticed multiple different end-stage dementia signs over the course of 10 years of our experience with this deadly condition.

This essentially means that the person with the disease and caregivers should start preparing for the affected person’s demise.

It is important to note that the illness affects people differently. Thus, the severity or timings of the end-stage WARNING signs may vary from one person to the next.

After diagnosis, most people will live between 4 to 20 years.

Before their final days on earth, a person who has dementia may showcase several symptoms.

Below we will discuss seven of the most common signs that occur during the last stage of dementia.

Most Common End-Stage Dementia Signs

1. Trouble Communicating

trouble communicating
You will notice that many people with dementia at the onset have a little bit of trouble communicating with others. This becomes WORSE as the years go by.

During the severe/last stage of dementia, the ill person will have significant communication issues. Some only use expressions or words sparingly to express themselves.

Most people do not verbally communicate at the very end. During the later stages of dementia, affected individuals may not be able to understand when other people talk to them.

In the event of no speech, persons with dementia may use facial expressions, body language, or show agitation to communicate their feelings and needs.

2. Health Problems

health problems
A wide array of health problems belong to the category of end-stage dementia signs.

This is where a person with dementia may become frail and prone to illnesses like infections such as pneumonia, pain or discomfort.

UTI’s (Urinary Tract Infections) are particularly common in the end stages. These can speed up the progression of the disease or cause more confusion in the people who have dementia.

Some persons may experience more side effects with the medications they are taking. Health problems may also include problems with vision, hearing, and mobility.

If treatable, any health conditions must be QUICKLY diagnosed and taken care of.

In addition to medication, caregivers should also try non-drug approaches like a massage and other alternative therapies to help offer relief to the persons with the illness.

3. Severe Memory Loss

severe memory loss
When a person with dementia gets to the final stages of the illness, high chances are that they will have SIGNIFICANT memory problems.

They may lose the ability to remember even the most recent memories.

For instance, a person may not recall what they have just eaten or who they were speaking to an hour ago. A high percentage of persons with the illness believe that they are living in earlier times, for example when they were still teens.

This implies that they may start to behave or using words that may not make sense to people around them.

The affected person may also lose their ability to recognize themselves or other individuals close to them, like children, friends, colleagues, and neighbors, etc.

4. Incontinence and Toilet Issues

incontinence and toilet issues
Another example of end-stage dementia signs is toilet problems and incontinence. As the illness progresses, there is a possibility that the person will EXPERIENCE some accidents while trying to use the washroom.

It can be anything from the occasional urine or fecal leaks or a total loss of control when the person needs to use the toilet.

Many factors can cause this, such as:

  • Forgetting where the facilities are or forgetting to visit the toilet in time
  • Constipation
  • UTI
  • Not recognizing the need to use the toilet
  • Prostate gland issues, etc.

To avoid inconvenience, there are many incontinence products that patients with dementia can use.

5. Problems with Mobility

problems with mobility
People with dementia may also experience mobility issues as they go through the last stage of the disease.

Most people will lose their ability to stand, walk or get up from a bed or chair gradually.

At this point, the affected individuals may start to experience more falls.

While not all people with dementia will have mobility problems, the issues may be brought about by dementia, balance problems, medical conditions like stroke, drugs, and the environment, amongst others.

People with mobility problems are likely to DEVELOP other issues, like bedsores because they can sit or sleep in one position for a long time without moving.

When mobility decreases, the person with dementia is also at risk of blood clots and other infections.

6. Problems with Eating and Drinking

problems with eating and drinking
Changes in eating and drinking patterns are also considered to be part of end-stage dementia signs.

Most people will lose their appetite, which makes them eat less. As a result, most people with dementia will lose weight in an unhealthy manner.

Losing weight may have an effect on a person’s IMMUNE system, making it harder for the body to fight off other diseases.

Many people will have a problem with eating and drinking because they develop mouth sores or have problems swallowing.

Swallowing issues arise when a person’s reflexes and muscles cease to function correctly.

7. Loss of Independence

loss of independence
When talking about end-stage dementia signs, it is only right to mention that a person with the illness may lose their independence. This means that they cannot do simple daily tasks on their own.

They have to rely on caregivers to assist with tasks like taking a bath, dressing, walking, eating, brushing teeth and so forth. This usually means that a person cannot live on their own.

A person must get all the care they need so that they do not suffer too much before they exit the earth. If it is NOT POSSIBLE to offer the support that a person needs at home, it is best if they move to a facility that will take care of their needs.

In the end, even though dementia is fatal, most will die of medical complications that are related to dementia.

For example, a person’s death may be a result of aspiration pneumonia or a blood clot as a result of being bedbound and immobile.

What is the Average Dementia Survival Time?

average dementia survival

When someone is diagnosed with any type of dementia, what is the average dementia survival time?

Let’s find out.

Dementia is a disease that is believed to affect more than thirty million people across the globe. It primarily affects older people who are over the age of 65.

However, there is still a small percentage of the population that gets dementia at a younger age.

The incurable illness is characterized by continued progressive disability.

This makes predicting the average dementia survival time quite difficult.

What is the Average Life Expectancy With Dementia?

Studies, nonetheless, indicate that on average, four and a half years is the median for survival after the onset of dementia.

Because people’s experiences are usually different, survival can also vary between 3.8 years to 10.7 years or more.

You should understand that dementia, in most cases, is not the direct cause of death.

Several risk factors that can impact the life expectancy of a person who has dementia such as:

Age of Diagnosis

average dementia survival
The age where an individual is diagnosed with dementia might affect the number of years they have on earth. People who go through earlier diagnosis are likely to live longer.

Researchers working at the Johns Hopkins Schools of Public health uncovered that the average survival time for people who get a diagnosis at the age of 65 is 8.3 years.

On the other hand, on average, 3.4 is the average life expectancy for seniors who get diagnosed when they are 90. This is mostly because the latter do not have enough time to plan for care as the disease progresses.

Additionally, dementia may be identified when its later stages have already begun which naturally decreases the length of survival.

To add to this many seniors who have dementia are already frail and can be affected by other conditions or illnesses which may also contribute to an earlier death.

Younger individuals, on the other hand (under 65 years) may experience a slow decline since they have more energy; thus, end up living longer than the ones who are over 80 when they receive their diagnosis.

Gender

average dementia survival based on gender
Several studies report that gender plays a role when it comes to average dementia survival rates.

It is said that women end up living slightly longer than men who have dementia. Averagely, male persons can live to a ripe age of 87 while their female counterparts can go up to 90.

This is even though women are at greater risk of developing dementia. Statistics show that about 2/3rds of people who have dementia are ladies.

Severity of Symptoms

severity of symptoms
The symptoms that a person who has dementia showcases may greatly affect average dementia survival chances.

Individuals who have severe motor impairments like a long history of falls or the tendency to walk away and get lost may have shorter life expectancies.

This is one of the reasons why it is important to work closely with a doctor when a person has dementia.

After thorough examinations, the medic might identify some problem areas that can be treated effectively.

At this point, you should remember that dementia currently does not have any cure.

However, there are treatments that a person may go through to help ease symptoms. These can be in the form of medicine or alternative treatments like therapies.

Consequently, this can help add some years to the individuals’ life on earth.

Type of Dementia

type of dementia affects dementia survival
There are different types of dementia that can affect a person. This can also determine the life expectancy of the ill individual.

Note that each of the dementia types will have different rates of progression and patterns.

It is; therefore, important to get the proper diagnosis so that an individual can know how to deal with the dementia they have.

Let’s touch base on the average life expectancy of people who have different types of dementia.

1. Alzheimer’s Disease

This is the most common dementia cause characterized by a build-up of abnormal proteins that damage the brain.

The lifespan of individuals with Alzheimer’s disease is typically between eight-twelve years. Healthy and fit individuals, however, tend to live longer.

2. Dementia with Lewy Bodies

Lewy bodies can be described as small protein deposits that affect memory, movement and thought. About 7% of dementia cases account for dementia with Lewy Bodies.

Experts believe that people with this type of dementia may have about six-twelve years on earth after diagnosis. Survival can be shorter for people with severe symptoms.

3. Vascular Dementia

Vascular dementia develops when small strokes continually damage the brain. Research indicates that life expectancy may be about four years.

This is mostly because Vascular dementia is also linked to other illnesses that cause that affect general health.

4. Frontotemporal dementia

Also known as Pick’s disease, this affects a person when there is damage in both their temporal and frontal brain lobes.

It is mostly diagnosed in people who are between the ages of 45-65.

Individuals with this type of dementia usually have about eight years to live from when the symptom start showing.

Alarmingly, the young-onset of the illness tends to progress faster.

This implies that a person who gets their diagnosis at thirty years to fifty may live fewer years than the one who is diagnosed at an older age.

Other Health Problems

other health problems
It is not uncommon for people with dementia to experience a host of other medical conditions.

Persons who have a history of heart attacks, heart disease, or diabetes might have shorter lifespans than the ones who do not have these health factors.

It means that persons who have dementia need to be very cautious about their health.

As a person grows older, they become more prone to infections and other diseases.

When these affect an individual, they can cause severe trouble to an individual, especially if they go untreated.

Persons with dementia should always consult with professional medical personnel talking about all the symptoms they are facing.

The medics can save a life opening up more years on earth.

Functioning Levels

functioning levels
The level of function is also one of the factors that can affect average dementia survival time. Some experts believe that persons who have higher levels of function may celebrate more birthdays.

This goes beyond memory and simple brain function.

Evidently, people who do more things for themselves have longer life-spans even with the presence of advanced dementia.

This is probably because they move around using their muscles without just sitting around something that is healthy for the body and mind.

Lifestyle Factors

lifestyle factors
The way a person chooses to live his/her life after a dementia diagnosis can also dictate how long they have on earth.

Some people do not receive the news well; hence, end up putting themselves into trouble.

They do this in several ways like drinking too much, smoking cigarettes, using medications without prescriptions and generally letting themselves go.

This is usually not a good move because it causes the immune system of the body to go lower, which means that one can end up making their exit on earth sooner.

It is advisable to be calm when you receive the news.

Yes, it may be daunting at first, but if a person chooses to take good care of themselves, there is a chance that they may end up living many more years without too much suffering.

Other factors that people may think may have an impact on longevity in persons with dementia include:

  • Whether a person lives at home or in an assisted facility
  • Whether an individual is married, divorced, or single
  • Level of education

In rare cases, individuals with less education live slightly longer than those with more education.

Some people may also argue that seniors living at home may be at an advantage of enjoying more years than the ones who are at a care facility.

In line with this, it may also seem like married people might enjoy a longer life expectancy than the ones who do not have partners.

The truth is after multiple studies, the differences in the above situations are not statistically significant.

How Many Years Does Treatment Add?

how many years does treatment add
Sadly treatment does not stop the progression of dementia. It only takes care of some of the symptoms, and in some cases, it can slow down the advancement of the illness.

This said, there is still no resounding evidence as to whether treatment can help add time to a person’s life or not.

Ultimately, the illness will progress and side effects and symptoms become worse as it takes a toll on the body and brain.

It is not to say that persons who have dementia should not consider treatment.

Talk to a professional doctor about possible treatment because it can help to treat some of the symptoms while at the same time improving the quality of life.

Closing Thoughts

Talking about average dementia survival time can be stressful and challenging.

Statistics can easily scare people with the illness and those around them especially caregivers.

However, not all people experience this progressive disease in the same manner.

Most people can still live good lives filled with togetherness and joy with dementia. Thankfully, there are loads of resources online that a person can use to help improve their dementia.

Mostly all they need is support, love, and a doctor’s guidance to live their lives to the fullest.

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