15+ Best Lewy Body Dementia Treatment Options

lewy body dementia treatment

After a person has been diagnosed with Lewy body dementia, the first thing they want to know is the options available in regards to Lewy body dementia treatment.

This is a type of dementia that develops when abnormal protein deposits, also known as Lewy bodies, are found in various areas of the brain.

These round, smooth lumps end up disrupting the normal functioning of the brain.

Sadly, to date, there is still no cure for the condition.

Best Lewy Body Dementia Treatment

There are some treatment options, however, available to help treat specific LBD symptoms, such as:

Use of Medications

There are different types of drugs that specialists can recommend for individuals who have Lewy body dementia as follow.

Cholinesterase Inhibitors

cholinesterase inhibitors
These are medications for Alzheimer’s disease that help to boost the levels of chemical messengers understood to be vital for judgment, memory, and thought in the brain.

Apparently, they enhance cognition and alertness. In some cases, they also help to reduce hallucinations and a host of other behavioral problems.

Drugs that your doctor may prescribe to help with these include Exelon, Razadyne, or Aricept among others.

Parkinson’s disease Medicine

parkinson's disease medicine
Some drugs can help reduce some of the signs and symptoms of Parkinson’s disease like slow movement and rigid muscles. These are drugs like Duopa, Rytary, and Sinemet, etc.

After taking these, you may find that a person can walk better and they experience less muscle stiffness.

Memantine

memantine
This is a drug that works by blocking the effects a person gets when they have excess amounts of glutamate, a chemical in the brain. It is mainly used by individuals who have moderate or severe dementia with Lewy bodies.

It’s also suitable for those who cannot take inhibitors for one reason or another.

Physicians may also recommend medications to treat some of the symptoms and signs that people with Lewy body dementia have.

Some individuals may be put on anti-psychotic drugs or tranquilizers to help lessen agitation.

Those who are facing depression may also get Antidepressants. These may offer solutions for sleep issues or movement problems.

Depending on how the body reacts to the illness, the person with Lewy body dementia may be on one or multiple drugs at the same time.

Before you take any drug to help with the medical condition, it is important to check any side effects they may bring about.

Some of the drugs above may bring about increased delusions, hallucinations, and confusion depending on the drug you are taking.

This is why it is important to consult widely with professionals before you start taking any medication.

Many doctors will start administering the medication in low doses, and if it is beneficial to the person with dementia, they increase the dosage levels over time.

If you experience any side effects, report to the physician immediately so that the professional will advise on whether to discontinue the drug or not.

When using medicine as part of the Lewy body dementia treatment plan, it is advisable to stay away from drugs that have anticholinergic properties.

These may end up making the condition worse because of the numerous adverse side effects they can cause. First-generation antipsychotic medications are also on the list of medications to avoid.

These can cause severe Parkinsonism, confusion, sedation, and can also be fatal.

Non-Drug Treatment Options

non-drug dementia treatment options
Non-drug approaches can also be part of the comprehensive Lewy body dementia treatment plan.

Depending on an individual, one may combine medication and these treatment varieties while others may stick to one type of treatment.

There are several options people have when it comes to non-medicinal treatment options, such as:

Therapies

People who have Lewy body dementia can benefit from different types of therapies, like:

1. Speech therapy

This can come in handy for individuals who experience poor enunciation and low voice volume. Experts agree that it can also help with swallowing challenges and enhancing muscle strength.

2. Physical therapy

Some of the options available include flexibility, strengthening and cardiovascular exercises as well as gait training.

Doctors may also advise a person with Lewy dementia to be active in a physical fitness program to engage in activities like water exercises, aerobics, and strengthening exercises.

3. Occupational therapy

It is also highly recommended because it may assist in maintaining skills as well as promoting independence and function.

Do not miss our complete overview of the different benefits of occupational therapy.

4. Psychological therapies

These can include cognitive stimulation where a person engages in exercises and other actives that help to enhance language ability, problem-solving skills, and memory.

5. Mental health counseling

This helps persons with dementia with Lewy bodies to learn how to better cope with their emotions and behavior changes.

Complementary Therapies

Lewy body dementia treatment complementary therapies
There are other forms of therapies that can help people who have Lewy body dementia feel better, like:

1. Pet therapy

For most people spending time with pets, they love can be an automatic mood booster. Getting a cat, dog, bird, or any other animal that a person loves can be just what they need to feel better.

2. Supplements and vitamins

Studies suggest that people with dementia with Lewy bodies lack adequate vitamins and nutrients in their bodies, something that can make the illness worse.

Taking adequate supplements and vitamins can help to take care of this problem. Just consult with your physician before taking anything because some of the supplements can interact with the drugs you are taking.

3. Aroma, dance, and music therapy

These usually work to improve an individual’s mood and also reduce anxiety by soothing and calming an individual.

We also created individual articles about aromatherapy, dance therapy and music therapy, where you can learn about all the benefits.

4. Massage

A person may also need professional massages once in a while to help with relaxation.

Home Modifications

home modifications
Although this may not be direct Lewy body dementia treatment options, some changes around the house can help a person with dementia to be more comfortable.

Several things can be done under this including:

1. Reducing clutter

With the help of a professional caregiver, it is crucial to modify the environment where the person with Lewy body dementia will be spending most of their time.

This can include using calming colors and removing things that can distract the person with the illness so that they can function better.

2. Make adjustment

Removing potential trip hazards like loose carpets can be of great help to persons with Lewy body dementia.

It is also vital to make sure that the affected person stays in a well-lit place. Adding handrails and grab bars is also a great idea.

You should also arrange furniture in such a way that it will not get in the way and cause problems.

Other Lewy body dementia treatment options that can be of assistance include:

1. Family psychotherapy

This helps people who want to support the patient with Lewy body dementia to learn how to effectively manage behavioral and emotional symptoms to co-exist well with their loved ones.

2. Getting quality sleep

It is common for people with Lewy body dementia to experience episodes of sleep disturbance.

It is, however, important for caregivers and individuals to try as much as possible to get restful nights as this also helps with treatment.

Some of the things that people can do include napping less during the daytime, engaging in physical exercise and having regular bed-time and waking-up time.

It is also advisable to avoid caffeine and nicotine when you are just about to jump into bed. Keeping the sleeping area quiet at comfortable temperatures can also help a great deal.

3. Stimulating mental functioning

You can do this easily by playing games and puzzles that demand thinking skills.

4. Support group

A person with dementia with Lewy bodies can also join a support group. These allow them to be surrounded by other people who have similar illnesses so that a person does not feel like they are alone.

Sharing experiences of the illnesses can also help one to identify practical solutions that they can use daily to reduce frustrations.

These may also encourage members to take part in exciting activities they like so that they can take their mind off the illness and enjoy life a little bit.

5. Creating routines

Having set structures and routines has been known to be beneficial to people with dementia because it helps to reduce confusion.

It can also help to enhance independence, especially during the first stages of the illness.

Final thoughts

Because people with Lewy body dementia usually experience the condition differently, it is important to be very careful when selecting the ideal Lewy body dementia treatment option.

What may work for one person may end up making your situation worse. Do not self-medicate simply because you read somewhere that there are drugs people with dementia can take to manage symptoms.

Always work with an expert physician who will closely monitor any medication or non-drug treatment you are on to know whether it is good for your body or not.

It’s also essential to conduct thorough research because they are new treatment methods cropping up often.

This will not only help you stay informed, but you can discuss the new developments with your doctor to pick a treatment option that will work for you.

15 Lewy Body Dementia Symptoms [LBD]

lewy body dementia symptoms

It is essential to know the most common and not so common Lewy body dementia symptoms as it can help with treating a person early.

You also need to understand that this type of dementia is, according to statistics, the third most common one. Alzheimer’s disease/dementia and vascular dementia are the only two more frequent.

Fun fact: Robin Williams (August 2014) had Lewy body dementia (LBD), and it is one of the main reasons for suicide.

Someone who is affected by LBD develops problems with thinking, movement, mood, alertness and starts showing signs of depression.

Of course, diagnosing LBD is not as easy as it sounds. There are other brain diseases that also have similar symptoms and are often confused.

What is Lewy body dementia?

Lewy bodies are another name for the significant increase in the creation of proteins that occupy the brain. This same protein is also linked to Parkinson’s disease.

Similarly, those with Lewy body dementia have alike symptoms compared to Alzheimer’s disease.

Moreover, predominantly, more men than women are affected by LBD in their sixties and above. Also, if a family member has Lewy body dementia or Parkinson’s disease, relatives are at higher risk.

Common Lewy Body Dementia Symptoms

1. Changes In Reasoning

changes in reasoning
Lewy body dementia (LBD) or dementia with Lewy bodies (DLB) presents itself as progressive dementia that affects thinking, independent function, and reasoning.

Abnormal protein deposits that accumulate in certain areas of the brain over time damage its cells over resulting in the condition.

Depending on different circumstances, everyone affected by the condition will display differing symptoms from the onset. A few people experience changes in reasoning seeing them struggle to process information and plan.

Their flow of ideas may become unclear, disorganizer or seem illogical. Changes in behavior are also common when someone with the condition rationalizes things differently.

The person may gravitate towards risky behavior that is out of the norm because of their impaired judgment.

2. Visual Hallucinations

visual hallucinations
Hallucinations are amongst the most commonly experienced Lewy body dementia symptoms. In fact, about 80% of people with LBD experience hallucinations marked by seeing things that in real sense aren’t present.

In the beginning, someone with the condition will often see animals or children who aren’t present.

Rarely, a few people may also experience nonvisual hallucinations meaning that they respond to smells or hear things that don’t exist.

Often, if the hallucinations aren’t disruptive in nature then there isn’t a cause for concern or treatment isn’t required.

However, if the person begins to respond in harmful or dangerous ways concerning their hallucinations, it’s crucial to seek prescribed medication.

3. Movement Difficulties (Parkinsonism)

movement difficulties parkinsonism
Some people suffering from DLB might never experience movement problems or it could take several years for them to start having this challenge.

It projects itself initially as things like handwriting changes in mild forms that it may easily be overlooked.

Often referred to as Parkinsonism, it describes the set of symptoms experienced during the offset of Parkinson’s disease dementia.

A person can experience the same symptoms with LBD in the later stages.

Some of the other signs that accompany it include:

  • Muscle stiffness
  • Loss of coordination
  • Slow movement when walking
  • Stooped posture
  • Shaking during rest
  • Balancing problems
  • Reduced facial expressions
  • A weakened voice when speaking
  • Difficulties swallowing

4. Changes In Body Function Regulation

changes in body function regulation
People with LBD suffer from significant changes affecting the part of their nervous system that is responsible for automatic functions.

It includes functions related to the heart, muscles, and glands.

The Lewy body dementia symptoms that point out to a shift in body function regulation include:

  • Experiencing sudden body temperature changes
  • Heightened sensitivity to cold and heat
  • Dizziness
  • Frequent falls
  • Constipation
  • Blood pressure issues
  • Urinary incontinence
  • A diminished sense of smell

Some people with LBD will start suffering from restless leg syndrome which is a condition that compels them to move their legs while resting.

It may even happen while sleeping and the only way to stop the unpleasant sensation is by moving to relieve the discomfort.

5. Problems With Cognition

problems with cognition
A person with LBD will often stare into space for prolonged periods of time and they also usually appear drowsy and lethargic. Problems with cognition is some of the common Lewy body dementia symptoms a majority of people experience.

It’s also identifiable from unpredictable changes in concentration, wakefulness, attention, and alertness throughout the day as well as from day to day.

The person will seem better one day only for them to re-occur the next day or worsen as the days progress. Typically, cognitive fluctuations are some of the symptoms that help physicians distinguish the condition from Alzheimer’s disease.

6. Sleep Problems

sleep problems
Sleep disorders can arise as one of the Lewy body dementia symptoms, but they often go undiagnosed. Visiting a sleep specialist can help with treating sleep problems as well as possibly diagnose the root cause.

Most people with DLB experience insomnia which is attributed to difficulties falling or staying asleep. People with LBD also experience excessive sleeping during the day where the person sleeps for two or more hours.

A few people also exhibit REM disorder which is a condition where someone seems to act out their dreams. In the case of REM, the person might talk while sleeping, display violent movements, and may even fall out of bed.

7. Memory Loss & Dementia

memory loss dementia
Degenerative thinking abilities or severe memory loss marked eventually set in and affect a person’s ability to perform their normal daily activities.

Memory loss is a primary Lewy body dementia symptom and it’s marked by forgetfulness, misidentifying objects, challenges multitasking, reasoning and problem-solving.

Confusion is yet another symptom that accompanies dementia and the person may suddenly have difficulties making sense of time and place.

However, unlike with Alzheimer’s dementia, the memory problems do not manifest at first but they start becoming apparent as LBD progresses.

Dementia can also alter mood and behavior leading the person to start displaying loss of initiative or poor judgment.

8. Inattentiveness and Confusion

inattentiveness and confusion
Related to memory loss, a person with LBD may become more inattentive than usual combined with sudden confusion.

It’s best described as spacing out where someone in a situation that requires their undivided attention wanders off in their thoughts.

Several other symptoms collectively contribute to inattentiveness including difficulties with sleep. Once again it is something that will affect someone’s ability to perform daily tasks and it’s more pronounced for people who are employed.

They often find it difficult to get work done and grasp new information which leads to frustration for the individual and those around them.

As the condition progresses, it also affects both written and spoken speech.

9. Trouble Interpreting Visual Information

trouble interpreting visual information
People with LBD have difficulties processing visual information with regard to object size, perceiving objects as overlapping, and they also display difficulties with counting tasks.

For instance, they may have problems drawing common objects like a clock and the symptom is worse in people who also experience visual hallucinations.

They also have trouble perceiving spatial information leading them to misjudge the distance between objects.

Often, a few of these visual issues can be handled either by prescribing antipsychotic medications or with the help of an eye-care practitioner.

Oftentimes, the diagnosis of visual problems can help in making the correlation to DLB as opposed to other neurodegenerative conditions.

10. Depression

depression
People with LBD have a sense of understanding about the changes that they are experiencing. Before they receive a diagnosis, it can be frustrating trying to understand the root cause of the problems they are experiencing.

Often, they cannot control most of the symptoms on their own and they may feel like a burden to family or friends trying to help them through the challenging time.

It leads them to develop a feeling of sadness and they also start feeling worthless because of their inability to get tasks started or complete them.

Problems with sleep as well as eating only aggravates the situation, and soon people with LBD go into depression.

11. Apathy

apathy
Along with depression comes the disinterest in enjoying fun activities or even normal tasks. Apathy as one of the Lewy body dementia symptoms leads someone to withdraw from social interactions. Someone with LBD becomes upset easily, and they often resort to pacing around or wringing their hands because of their inability to feel settled.

They also repeat words or phrases severally which impedes their ability to hold a decent conversation. They can recognize their shortcomings in social settings which makes them rationalize that withdrawing from such situations is the solution.

It becomes more pronounced when the person becomes bedridden perhaps owing to the progression of one of the other symptoms.

12. Unpredictability Of Symptoms

unpredictability of symptoms
One of the striking signs of DLB is the fact that the severity of symptoms changes from time to time. The shifts are often dramatic and someone can never tell when they are going to strike and in what form.

Often, it can give a false sense of hope that someone with the condition is cured only for the symptoms to come back in more severe forms. The shifts in “good days and bad days” makes it somehow easy to recognize that there is an existing health problem.

Subsequently, early diagnosis can come about from catching on to these unusual changes at the very start.

13. The One-Year Rule

the one year rule
Doctors typically use the one-year rule to make a diagnosis distinction between Lewy bodies dementia and Parkinson’s disease.

The rule of thumb is that cognitive difficulties precede movement issues by more than a year when someone has Parkinson’s diseaseis suffering from Parkinson’s disease dementia.

However, in the case of LBD, the cognitive problems may start concurrently with movement problems or within a year of developing issues with cognition.

The symptoms of Lewy bodies dementia are treatable on their own and complete recovery is based on their severity. However, much like all other forms of dementia, there is still no cure for this type of dementia.

14. Staring Into Space/Zoning Out

staring into space
If a person is staring into space, it does not necessarily mean he or she has Lewy body dementia. However, once they keep doing it over and over again, over a longer period of time, you need to start taking things into consideration.

Indeed, staring into space or zoning out is one of Lewy body dementia symptoms, you should be aware of. For your information, they can stare into objects far away or items nearby.

One of the reasons they might begin to stare or completely lose track of what is happening around them is due to hallucinations. We already mentioned the latter above, so please re-read it if necessary.

15. Imperfect Digestive Process

imperfect digestive process
Since Lewy body dementia affects all sorts of different parts of the body, one of the symptoms is an imperfect digestive process. A patient can experience all kinds of inconveniences, like dizziness, constipation and bowel issues.

If the body does not get enough nutrients through quality food, an array of other conditions can occur that can worsen dementia. Not just that, but rapidly speed up the progress.

As a caregiver, it is crucial to understand the ill person’s eating habits even from before the symptoms and the possibility of dementia become a thing.

You should act immediately and take the person to the doctor as soon as possible.

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